Umbrella Organization of European Waldenström patient supportgroups and patients

European
WALDENSTRÖM'S
MACROGLOBULINEMIA
network

Waldenström's Macroglobulinemia (WM)

This Website is now available in all European languages! See above Google translate.

Waldenström's Macroglobulinemia is a rare, slow-growing cancer of the blood. It is also named lymphoplasmacytoid lymphoma. WM causes overproduction of a protein, called monoclonal immunoglobulin M (IgM or "macroglobulin") antibody. Excess IgM in the blood causes hyperviscosity (thickening) of the blood. This can be the cause of various symptoms. Some patients however do not experience symptoms. In 1944 the Swedish Dr. Jan Waldenström was the first to describe the disease. About 5 in 1.000.000 people per year get diagnosed WM.

WM is a serious disease, but slow moving. Most treatments are directed at symptoms. Waldenström's Macroglobulinemia is classified as an "orphan" disease. Orphan diseases are so rare that few, if any funds are available for research. Current treatment options for WM are based on research into similar disorders, such as chronic lymphocytic leukemia and multiple myeloma.
More information about treatment of WM you can find at "WM information" in this website.

More detailed information about WM and WM patient support organisations you can find via "Links" in this website.

Bing Center publishes study detailing the genomic landscape of WM.See the webpage "WM information"   and than  "BLOOD"


Specific information about WM in your country: www.waldenstrom.info

Assistance to set up WM patient groups in Europe:

 
If your country in Europe does not yet have a WM patient support organization and you would  like to start contacts between WM patients and/or carers, you can make use of the following web-site: www.waldenstrom.info.
A webpage in your own language is now available for each country in Europe.
 
Information relevant to your own country can be posted on this country page in your language. Sharing such information may eventually lead to the formation of a WM patient support group in your country.
 
For more information how to get access to your country page: webmaster@waldenstrom.info

This is a website under permanent construction made by WM patients for WM patients.We will add new information in due time.
Disclaimer : By your use of the EWMnetwork for information and communication you relieve EWMnetwork of any responsibility
for the content of this website. Links to third-party sites appearing on this website are supplied for information only and EWMnetwork
cannot be held liable for the content or management of any such sites.