Umbrella Organization of European Waldenström patient supportgroups and patients


More WM patient contact in Europe !?

The need for Patient Support groups: a call on volunteers
“Emotional and social support for people living with a rare disease is as important as medical care. Patients, their families, friends and caregivers can learn to better manage their cancer experience by increasing their familiarity with the disease, gaining a positive attitude, and developing coping skills.
Support can come from family and friends as well as health professionals, support groups, or your place of worship."

A patient support group appears very helpful to share experiences about your illness with other people.
However, because Waldenström’s Macroglobulinemia (WM) is a very rare disease, only few countries in Europe have a WM patient support group. In some countries organizations for (Non Hodgkin) Lymphoma give information about WM, but don’t organize contacts between WM patients.

On this EWMnetwork website you can find under the entry "Patient Organisations" existing patient support groups or contact persons for WM in some European countries.
In many countries there is no WM patient support yet. See for information about European countries: our Waldenstrom info website:

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